I've been really bad about blogging recently. I leave random comments on my Facebook page, but my initial goal in having my Blogspot journal and my Livejournal journal was to actually write out full thoughts. I did better when LJ was the only outlet, then FB came along and ate my soul. Now, while FB still has most of my soul, I'm going to try to write at least a little bit every other day (or every day) about how things went that day. Maybe I can start getting some things into a better rhythm...
Let's start with a recap of what's going on with the kiddos...
Liam is doing really good in school. He had some small issues today, but I expected that with him having the Valentines' Day party. Parties always mess up the routine and make it hard for him to concentrate during the day. He also seems to be coming down with the cold that I have. With his immune system issues, he doesn't get sick "normally"... which is good and bad all at the same time. We've been working on the GFCFSF diet. He's pretty much entirely soy free. That's been pretty simple since I can't have soy either. He's also probably 98% Casein free at home. I still need to figure out how to do daily lunches for him for school without going broke. The school says they can't provide food for his diet, tho the information I'm finding online says that they are legally bound to fulfill his diet's special needs. We had to send in a doctor's note to allow him to have apple juice instead of milk (the only choices are 2% or skim milk) for lunch. If we could find these for less than $4 a box, and if the school had a microwave/oven, I'd buy those and send them in for him for lunch.
Ethan just started school at PACyber in the K4 program. We got his books and materials on Saturday, and now we're just waiting for his laptop, scanner, printer, etc. He's pretty excited about everything. In going through the first workbooks, I've noticed that a lot of the initial stuff to do is already stuff he's already done with the TSS or with me in other workbooks. I think that he'll be able to go pretty quickly through this initial stuff. I'm anxious to see how he does when he gets into the more challenging stuff.
He's also going to be going back to speech this week. Ms H got it through the insurance, so he'll be doing a group speech session on Wednesdays now. When I told him last week that he'd be seeing Ms H again, he was all excited. :)
Health wise, he's doing good. We finally had the post-op appt for Urology last Friday. The doctor said that his incision looked really good, and there is no sign of the Hernia or either of the Hydroceles reappearing. He did tell me that sometimes they do come back, and sometimes they come back on the opposite side, so I will be keeping an eye on things, as usual. We are still waiting to get an appointment with the special neurologist to talk about Tourette Syndrome and Tic Disorder. I should be getting a call sometime in March to schedule apparently. I need to call the doctor back we saw in December and see if she sent out the report from his appointment. She had said it would be a bit longer since it was over the holidays, but I think we should have received it by now.
As for me... well, I'm trying to get things back into a routine. At the end of last summer, I found out there was a major mess up with my student aid, so I'm no longer working on my Bachelors. I'm pretty annoyed about it. I would have been graduating this August if this mess up wouldn't have happened. SO close to getting that finished, yet so far away. I did pick up a certificate course through the same place I did my Pharmacy Tech training, in Medical Billing & Coding. I decided to do this mostly to have the knowledge on billing and coding for when I become an IBCLC... and also it will help me navigate the stuff with the boys' medical stuff.
Right now I am trying to get myself to call my doctor to see what is going on with me. I've been having issues that is more than likely Fibromyalgia and Chronic Fatigue Syndrome, and every few weeks I've been having issues with either my heart or lungs (can't tell exactly what is going on). The main reason I haven't called is because I'm afraid that the doctor will say that there isn't anything wrong. Yeah, it's stupid I know. It seems when the issues happen, I don't have anyone to watch the kids or a way of getting into the doctor/clinic/etc. I know I really need to get over it and just make the call or go into the walk in clinic and deal. I am hoping with the new routine that I'm trying to set up that I'll feel more comfortable doing that.
I'm also working on re-doing my office. My goal is to get things moved around, add more shelving to get things along the walls and out of the middle of the floor. Then the next plan will be to get a couch. Yes, a piece of real furniture! I realized that I spend more time sitting at the computer because that's the only chair that I have that isn't a folding chair. I don't sit with the kids to play video games because I don't like the folding chairs in the livingroom. Recently, Ethan has been wanting to sit and cuddle with me to watch shows after he is done with the TSS, but it's not comfortable to sit at the computer chair with him on my lap. He does like to be "squished" behind me, but again, that's not really the same. I remember sitting with Mom in her chair and watching Sesame Street and Mister Rogers. I loved that! I really think adding that in, and having a full routine where Ethan has TSS in the morning, then we sit and watch some shows, and then we do his school work before Liam gets home will really help his routine.
Not to mention that I hate inviting people over since our only seating arrangement is folding chairs. I'd love to have Mom, Dad, and Papa come down sometime but they can't be expected to sit on metal folding chairs. We did have a futon, but honestly I don't like that thing. It's too low to the ground. I can't easily get up and down on that thing. It's also not very soft, and you have to keep pulling the mat back up on it. Just really not convenient in my opinion. It would be fine for a spare room, but I want something for every day.
I'd really like to get this place feeling more like a "home". I think it would help with a lot my other issues.
I'm also hoping to save up to buy myself a treadmill. I can't get myself motivated to go out and walk, and can't afford to pay for childcare plus the gym membership to go out to do it. I'm thinking that if I can get a good treadmill here, I can walk on it late at night when I'm watching my TV shows.
Eh. That's a pretty decent start.
